Physical Health Issues and the Ordeal that Comes

My husband was diagnosed with asthma while he was in the military where he was exposed to burn pits and environmental exposures during several deployments, as well as his career field. In the last 5 years, every year, his asthma has only gotten worse. In the last year and a half, it’s resulted in over 8 ER visits at the VA. The last ER visit was in August of last year.

This time, I begged him to go to our local ER instead of the VA. This ER ended up admitting him for two days. During that hospital stay, they did more for my husband than the VA did in the last 10 years. One of the things the civilian hospital did was a CT scan where they found lung nodules and his thyroid enlarged.

We are now almost a year later, and his breathing only seems to be “good” when he is on prednisone. He also takes a Nebulizer daily, along with a daily inhaler, and has a rescue. He waited months to make a follow up appointment with the civilian doctor they sent him to. I think it has been avoidance and his PTSD that complicates things. He finally has an appointment in August.

The nodules concern me. But the VA doesn’t seem to be in a hurry, or seem to care after we gave them the reports from the civilian hospital, or even after the numerous VA ER visits. When it comes to his physical health, the VA has done such a poor job. Their only answer seems to be to throw medication at the problems, instead of actual treatment. It’s so stressful and frustrating dealing with them on EVERYTHING. In addition, the wait times, even prior to COVID, are absolutely ridiculous. It’s a full time job, on top of my full time job, caring for my husband, and raising a family, while dealing with them.

In the 10 plus years he has been at the VA, he has had half a dozen or more primary care providers. And each time, everything starts back over, and things fall through the cracks. He has yet to see a pulmonologist at the VA after being in their system for 10 years, diagnosed with asthma, and it brought up at each visit. He finally got a referral last year, but still hasn’t seen anyone! The pulmonologist said he needed a current pulmonary function test. I told the nurse when she called, they have a copy of 2! And we have yet to hear anything back.

Honestly I haven’t pursued it because every time I call, I spend a minimum of 45 min on the phone, most of the time going in a round Robin, hang ups, and not getting to who I need to. It’s time consuming and draining. We are lucky enough to have private insurance, so I have pushed to have him seen outside the VA. However, we are still spending money for deductibles, co-pays and co-insurance. But he gets seen much faster. And if, God forbid, it IS cancer, hopefully we can get an affective treatment plan in place quickly. I feel like if we waited on the VA, he would die waiting to be seen.

Depression

Depression.  It’s a funny thing.  Not funny as in haha, but funny as in irony.  It isn’t something that is always felt.  It isn’t always a state of “feeling down” or “feeling blue,” if it is even felt that way at all. Sometimes it’s feeling of being overwhelmed, or weighed down. Sometimes, it can be a sneaky bastard that sneaks up on you with no warning.  Before you know it, it’s hold on you is so great, so strong, that it can make getting out of bed feel painful and at times, impossible.  Others cant see the depression, and often times look like nothing is wrong.  Many times, we don’t even recognize it  ourselves, that we are depressed.  We only know that we have no drive, no energy, with everything being difficult. Our focus is limited, and our desire to sleep so we can dream as a way to escape is strong.  The yearning to dream becomes what drives us, so we can escape the heaviness and complexity that has become our life.  Life, simply put, has become too difficult.  It isn’t as if we meant it to become that way, or that we can simply control it.  In fact, it is harder to control our feelings when depression has turned into despair.  The weight of life can become too much to bare.  One feels like they are in quicksand, or treading in water, struggling to keep their head above the surface.  When we are that deep in, it can be difficult to get yourself out, especially without the help of a professional.  

So, how do we help someone we love, when they aren’t themselves, but know they are depressed? We know how they feel.  We know where they are at.  But how do we help them?  In some respect, you empathize and try to nudge and gently push. But not too much, in fear of sending them either further in the rabbit hole, with the dark thoughts finally taking over, and ending with tragedy.  Or in fear of possibly sending them in the opposite direction, in an unintended push back into the sleepless nights, the adrenaline rush, and after the 3rd day of no sleep, the alter ego, Mr. Hyde showing his ugly face. The balance can be so delicate, it’s hard to know what the right answer is. It’s hard to know how to help your loved one, knowing the only way you were pulled out was through the help of a professional.  But how do you get help for someone who is refusing it or worse, not even acknowledging it?  

And then, the other part of you is mad.  Angry even, that they refuse to get help.  You got help, so why can’t they?  Why can’t they see what this is doing to you?  To their children?  Why cant they WANT to get help, even if it is only for their family?   The feeling of helplessness and the frustration that goes along with it.  You want to scream at them, shake them out of it since the encouragement, the gentle nudges, and pushes have gone on to be ineffective.  A momentary wish of bitch slapping them out of it comes to mind, but you quickly realize that too isn’t the answer.  Your marriage counselor would likely frown on that.  

And there is so much you want to say to them, but don’t, for fear of making things worse. You tell them their family needs them, their children need them, only to have it appear as though it isn’t enough.  And the fear sets in that you and your children are become just that.  Not enough.  The answer seems so damn elusive, that you yourself are beyond frustrated, and feeling helpless.  Hopeless even.  The fear is a harsh reality.  A reality you hope never comes to be.  

Damn this depression.  You curse it, call out its name, you try to shove it out of the way, and yet it remains.  Takes further hold even.  You see your loved one slipping away, and nothing seems to snap them back into reality.  And you wonder, where do we go from here?  Can we go up?  Or do we go even further down?  What is the answer?  I wish I knew.

They Sacrifice

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Don’t think our service men and women don’t sacrifice?  Think again.  Not only do they sacrifice themselves when they go off to war, but while gone, they sacrifice time with their family, missing out on birthdays, holidays, births, deaths, and special moments.  They miss that first step their child makes, or the first word, or even the first day of kindergarten.  From war, many lose a piece of themselves, some physically,  some mentally, some both and some lose their lives. 

While yes, we do have a volunteer military, and our loved ones volunteered for their country, they did so so yours wouldn’t have to.   If not for the men and women who volunteer for the war they go to (justified war or not), those who don’t want to go, would be forced to do so.

So while you may not agree with their mission, you can still support the ones that fight.  They are still owed our gratitude and our respect.  They have sacrificed so much, and are asked to continue to do so.  Isn’t it time we sacrificed too?  For many, the scars are deep, and for some, invisible.

The support shouldn’t stop once they are home.  Support our Vets should be just as big of a catch phrase and action as Support our Troops. 

We lose 22 veterans a day to suicide.  Shouldn’t it be time we tell them #youmatter?

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